Making connections, changing lives for people affected by ME/CFS and associated conditions.

All posts in Postural Orthostatic Intolerance (POTS)

Autoimmune Disorders in POTS Patients

A recent study published in Lupus has looked at the prevalence of autoimmune markers and autoimmune disorders in postural tachycardia syndrome (POTS) patients. In the study, the medical records of […]

Painful Temporomandibular Disorders Common in PoTS Patients

Temporomandibular Disorders (TMD) are a group of conditions that cause pain and movement issues in the jaw and the facial muscles that control it. Symptoms include pain in the jaw, […]

Contributors needed for a ME/CFS documentary

Andrew Love is a seventeen-year-old POTS patient, with a cousin who suffers from ME/CFS. He is a high school student, not a professional documentary maker, but he’s hoping to make […]

Drug Stops Orthostatic Intolerance in ME/CFS In Lab – Next Steps

Orthostatic Intolerance is a problem common to many ME/CFS patients, who may suffer from tachycardia, hyperventilation, dizziness, anxiety and cognitive impairment due to nothing more extreme than simply standing up. […]

Exploring the puzzle that is ME/CFS and related neuroimmunlogical diseases

On 13th September 2014 we got in a room with world leading researcher Professor Sonya Marshall-Gradisnik, ME/CFS and Lyme medical expert Dr Richard Schloeffel as well as highly regarded GPs in their […]

POTS amplifies the cardiac output response in adolescents

Article: High flow variant postural orthostatic tachycardia syndrome amplifies the cardiac output response to exercise in adolescents   A study finds 40% of adolescents with POTS experience hyperkinetic circulation during exercise […]

A UK Study distinguishes between POTS and CFS

Article: Do doctors confuse ME with a heart problem? The multisystemic nature of ME/CFS is problematic for GPs when attempting to diagnose a condition. This study draws distinctions between POTS […]

Sleep disturbances and autonomic dysfunction in patients with PoTS

Article: Sleep disturbances and autonomic dysfunction in patients with postural orthostatic tachycardia syndrome Authors: Julia Mallien, Stefan Isenmann, Anne Mrazek and Carl-Albrecht Haensch Abstract Many patients with postural tachycardia syndrome […]

Adolescent Fatigue, POTS and Recovery: A Guide for Clinicians

Adolescent fatigue, POTS, and recovery: a guide for clinicians Abstract: Many teenagers who struggle with chronic fatigue have symptoms suggestive of autonomic dysfunction that may include lightheadedness, headaches, palpitations, nausea, […]

Study finds autoimmune basis for POTS – implications for ME/CFS

Article: Problems Standing? Studies Suggest Autoimmunity Causes Orthostatic Intolerance: Implications For Chronic Fatigue Syndrome     People with POTS experience high heart rates, fatigue, dizziness, and light-headedness while standing or even […]